Joshua update

Joshua is back home....they got back late tonight. He was able to come home on an antiseizure medication. I'm still trying to wrap my brain around what they said but basically, with his medical condition with microcephaly, he is prone to seizures and for whatever reason, he is reacting in that way right now. The dark flem was thought to be due to irritation of his esophagus with vomiting which can occur.

He isn't showing the level of severity of symptoms that would indicate a life-threatening development in his brain that would require surgery....of that we are thankful and relieved. So for now he needs to be on this med to control the seizures and which will allow him to not vomit what he drinks and eats (which is good as he is already very thin). We will have to followup with a neurologist and get some testing done, as well as with a cardiologist.

I was feeling frustrated earlier (as I was kept informed on the phone) as I was hoping to know why this sudden change and seizures ...but for now we need to accept that this is part of his condition, and while I tend to think "how can we fix the problem? ", there are some things that we can't control. My husband reminded me that God made Joshua like he is and we won't be able to necessarily fix him.
I'm not big on medications to begin with but if it is what he needs, of course, that is what we will do. Hopefully, he won't need to stay on them, and we can pray for better health for him but accept whatever the Lord has in store for him.

I shared with the children today about how we don't know what that is...but we can seek to love him each day and make the most of whatever time the Lord gives him. We can be thankful that however Joshua is (or how long he lives...as often their longevity is shortened) , that God rescued him from certain death this past summer and that he now lives in the love of a family...

toddling little ones crawling up to pat him on the back and babble
being held on Daddy's lap (and legs stretched...not always fun but good for him)
brother with DS bringing him toys and "talking" to him to tell him how to use it
big sisters making and helping to feed him
big brother rocking with him
hearing hymns and singing around him
watching his mommy walk around the kitchen
sitting by the window
going outside and seeing beautiful trees and feeling fresh air
eating homemade baby food
hugs and kisses...
even from the doggies :)

These little blessings remind me that while he may not be able to "DO" much, that he is so much better off ..just being in our family, and we too are blessed by having him.
O, Lord, help us love this precious one more...to make more time to just show him your love.